Le sentiment de solitude chez des personnes porteuses d’une trisomie 21
Although the life expectancy of individuals with Down’s syndrome continues to increase, they experience premature aging marked by cognitive impairments from the age of 35–40, which could make them more vulnerable to feelings of loneliness. This pilot study focuses on the experience of loneliness and...
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| Glavni autori: | , , , , |
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| Format: | Article ou chapitre numérique |
| Jezik: | Français |
| Izdano: |
2025
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| Teme: | |
| Online pristup: | Accès Université d'Orléans et IFPM Accès Université d'Orléans et IFPM |
| Sažetak: | Although the life expectancy of individuals with Down’s syndrome continues to increase, they experience premature aging marked by cognitive impairments from the age of 35–40, which could make them more vulnerable to feelings of loneliness. This pilot study focuses on the experience of loneliness and related factors expressed by individuals with Down’s syndrome, as reported by their close relatives during semi-structured interviews. Three adults aged 40 or older with Down’s syndrome participated in this research, along with one of their relatives. The results suggest that, for participants with Down’s syndrome, loneliness might manifest as a voluntary withdrawal devoid of negative emotions, while their relatives tend to attribute them a negative experience of loneliness. The theme of grief was identified as a common explanation for the occurrence of the feeling of loneliness. Resources mentioned for coping with loneliness include ritualized activities and a supportive environment. In conclusion, the originality of this study is to explore loneliness in people with Down’s syndrome in early aging (i.e., aged 40+), by combining information gathered from them as well as from relatives. It thus offers a systemic perspective on the feeling of loneliness among people with Down’s syndrome, highlighting the need to take into account the differences in perception between the people concerned and their relatives. |
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