The right to health and the right to science in the architecture of the EHDS
This article analyses the secondary use of health data in the context of the European Health Data Space (EHDS), with a focus on scientific research purposes. Assuming that neither the EHDS nor the GDPR expressly address the public interest requirement relating to scientific research, the article aim...
Gespeichert in:
| Veröffentlicht in: | URI:https://journals.openedition.org/cdst, |
|---|---|
| 1. Verfasser: | |
| Format: | Article ou chapitre numérique |
| Sprache: | Anglais |
| Veröffentlicht: |
Cahiers Droit, Sciences & Technologies
2026
|
| Schlagworte: | |
| Online Zugang: | Accès Université d'Orléans et IFPM Accès Université d'Orléans et IFPM |
| id |
openedition-oai:revues.org:cdst_14074 |
|---|---|
| record_format |
openedition |
| spelling |
openedition-oai:revues.org:cdst_14074 https://doi.org/10.4000/16tji en https://journals.openedition.org/cdst/14074 2026-09-22T02:00:00Z info:eu-repo/semantics/openAccess article info:eu-repo/semantics/article urn:handle:20.500.13089/16tji https://creativecommons.org/licenses/by/4.0/ The right to health and the right to science in the architecture of the EHDS Cahiers Droit, Sciences & Technologies Presses universitaires d'Aix-Marseille - PUAM info:eu-repo/semantics/reference/issn/2431-8663 info:eu-repo/semantics/reference/issn/1967-0311 URI:https://journals.openedition.org/cdst Catanzariti, Mariavittoria droit à la santé droit à la science Espace européen des données de santé EEDS recherche scientifique droit de refus right to health right to science European Health Data Space EHDS scientific research right to opt out This article analyses the secondary use of health data in the context of the European Health Data Space (EHDS), with a focus on scientific research purposes. Assuming that neither the EHDS nor the GDPR expressly address the public interest requirement relating to scientific research, the article aims to break down the term “health” into the related rights that can be exercised by individuals and groups involved in processing health data. It argues that the multifaceted nature of health data could lead to a more comprehensive level of protection by encompassing the participatory dimension of the right to health. To this end, the paper attempts to demonstrate its central argument that the right to science and the right to health should be considered complementary rights when assessing the reform of secondary use. Cet article analyse l’utilisation secondaire des données de santé dans le cadre de l’Espace européen des données de santé (EEDS), en mettant l’accent sur les fins de recherche scientifique. Partant du principe que ni l’EEDS ni le RGPD ne traitent expressément de l’exigence d’intérêt public relative à la recherche scientifique, l’article vise à décomposer le terme « santé » en droits connexes pouvant être exercés par les personnes et les groupes impliqués dans le traitement des données de santé. Il soutient que la nature multiforme des données de santé pourrait conduire à un niveau de protection plus complet en intégrant la dimension participative du droit à la santé. À cette fin, l’article s’efforce de démontrer son argument central selon lequel le droit à la science et le droit à la santé devraient être considérés comme des droits complémentaires lors de l’évaluation de la réforme de l’utilisation secondaire. urn:doi:10.4000/16tji |
| collection |
OpenEdition Journal |
| language |
Anglais |
| format |
Article ou chapitre numérique |
| building |
0/Bibliothèque numérique/ 1/Bibliothèque numérique/OpenEdition Journals/ |
| topic |
droit à la santé droit à la science Espace européen des données de santé EEDS recherche scientifique droit de refus right to health right to science European Health Data Space EHDS scientific research right to opt out |
| spellingShingle |
droit à la santé droit à la science Espace européen des données de santé EEDS recherche scientifique droit de refus right to health right to science European Health Data Space EHDS scientific research right to opt out Catanzariti, Mariavittoria The right to health and the right to science in the architecture of the EHDS |
| description |
This article analyses the secondary use of health data in the context of the European Health Data Space (EHDS), with a focus on scientific research purposes. Assuming that neither the EHDS nor the GDPR expressly address the public interest requirement relating to scientific research, the article aims to break down the term “health” into the related rights that can be exercised by individuals and groups involved in processing health data. It argues that the multifaceted nature of health data could lead to a more comprehensive level of protection by encompassing the participatory dimension of the right to health. To this end, the paper attempts to demonstrate its central argument that the right to science and the right to health should be considered complementary rights when assessing the reform of secondary use. |
| author |
Catanzariti, Mariavittoria |
| author_facet |
Catanzariti, Mariavittoria |
| author_sort |
Catanzariti, Mariavittoria |
| title |
The right to health and the right to science in the architecture of the EHDS |
| title_short |
The right to health and the right to science in the architecture of the EHDS |
| title_full |
The right to health and the right to science in the architecture of the EHDS |
| title_fullStr |
The right to health and the right to science in the architecture of the EHDS |
| title_full_unstemmed |
The right to health and the right to science in the architecture of the EHDS |
| title_sort |
right to health and the right to science in the architecture of the ehds |
| publisher |
Cahiers Droit, Sciences & Technologies |
| publishDate |
2026 |
| container_title |
URI:https://journals.openedition.org/cdst |
| url |
https://ezproxy.univ-orleans.fr/login?url=https://doi.org/10.4000/16tji https://ezproxy.univ-orleans.fr/login?url=https://journals.openedition.org/cdst/14074 |
| _version_ |
1877291601230823424 |