The right to health and the right to science in the architecture of the EHDS

This article analyses the secondary use of health data in the context of the European Health Data Space (EHDS), with a focus on scientific research purposes. Assuming that neither the EHDS nor the GDPR expressly address the public interest requirement relating to scientific research, the article aim...

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Bibliografski detalji
Izdano u:URI:https://journals.openedition.org/cdst,
Glavni autor: Catanzariti, Mariavittoria
Format: Article ou chapitre numérique
Jezik:Anglais
Izdano: Cahiers Droit, Sciences & Technologies 2026
Teme:
Online pristup:Accès Université d'Orléans et IFPM
Accès Université d'Orléans et IFPM
Opis
Sažetak:This article analyses the secondary use of health data in the context of the European Health Data Space (EHDS), with a focus on scientific research purposes. Assuming that neither the EHDS nor the GDPR expressly address the public interest requirement relating to scientific research, the article aims to break down the term “health” into the related rights that can be exercised by individuals and groups involved in processing health data. It argues that the multifaceted nature of health data could lead to a more comprehensive level of protection by encompassing the participatory dimension of the right to health. To this end, the paper attempts to demonstrate its central argument that the right to science and the right to health should be considered complementary rights when assessing the reform of secondary use.