Le défi du travail diagnostique de maladie d’Alzheimer dans l’accompagnement des personnes avec trisomie
Based on sociological research concerning the professional and family support of people with Down’s syndrome suffering from Alzheimer’s disease, this article explores the issues involved in obtaining a diagnosis for this population. More specifically, it focuses on the diagnostic work carried out by...
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| Главные авторы: | , , |
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| Формат: | Article ou chapitre numérique |
| Язык: | Français |
| Опубликовано: |
2025
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| Предметы: | |
| Online-ссылка: | Accès Université d'Orléans et IFPM Accès Université d'Orléans et IFPM |
| Итог: | Based on sociological research concerning the professional and family support of people with Down’s syndrome suffering from Alzheimer’s disease, this article explores the issues involved in obtaining a diagnosis for this population. More specifically, it focuses on the diagnostic work carried out by two categories of actors: on the one hand, professionals working in establishments in the field of disability who are called upon to support people with Down’s syndrome presenting signs suggestive of Alzheimer’s disease, and on the other, doctors called upon to establish a medical diagnosis. For professionals in the field of disability, the task of making a diagnosis involves a variety of issues, depending on their previous experience and the institutional configurations in which they work. For doctors, diagnostic work challenges medical practices by shaking up their ordinary frameworks. In particular, their level of awareness of the prevalence of Alzheimer’s disease among people with Down’s syndrome, and their knowledge of diagnostic approaches adapted to intellectual disability, are highly heterogeneous. Finally, this diagnostic work can be a source of tension between doctors. |
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