Sharing linked data for health research : toward better decision making
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked...
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| Auteur principal: | |
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| Autres auteurs: | , |
| Format: | Livre numérique |
| Langue: | Anglais |
| Publié: |
Cambridge ; New York :
Cambridge University Press
2022.
Cambridge : |
| Collection: | Cambridge bioethics and law
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| Accès en ligne: | Accès sur la plateforme Cambridge University Press Accès sur la plateforme ISTEX (Corpus CUP Droit) Accès Université d'Orléans |
| Note: |
Cambridge University Press - CUP - Corpus Droit (Licence nationale) |
| Autres localisations: | Voir dans le Sudoc |
| Edition sous un autre format: | • Sharing linked data for health research, toward better decision making, Carolyn Adams,..., Judy Allen,..., Felicity Flack,..., 2022, Cambridge, Cambridge University Press, 1 vol. (XXI-252 p.), 978-1-108-42664-0 |
| Résumé: | Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise. |
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| Description: | Cambridge University Press - CUP - Corpus Droit (Licence nationale) |
| ISBN: | 9781108675789 (PDF) |
| Accès: | Accès en ligne pour les établissements français bénéficiaires des licences nationales Accès soumis à abonnement pour tout autre établissement Conditions particulières de réutilisation pour les bénéficiaires des licences nationales. https://www.licencesnationales.fr/wp-content/uploads/2024/03/2023-14_Collex_Cambridge_CCTP.pdf |