Les discordances d’enquête
The study of family care practices exposes researchers to the potential existence of discrepancies between the statements of the different people involved. What can be done when several members of the same entourage give different descriptions of caring relationships, and sometimes even disagree on...
Kaydedildi:
| Asıl Yazarlar: | , , |
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| Materyal Türü: | Article ou chapitre numérique |
| Dil: | Français |
| Baskı/Yayın Bilgisi: |
2024
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| Konular: | |
| Online Erişim: | Accès Université d'Orléans et IFPM Accès Université d'Orléans et IFPM |
| Özet: | The study of family care practices exposes researchers to the potential existence of discrepancies between the statements of the different people involved. What can be done when several members of the same entourage give different descriptions of caring relationships, and sometimes even disagree on who gives care and who receives it? This article proposes to consider these discrepancies as a result in themselves, whose interpretation provides a better understanding of family organisations. It is based on the revisiting of a mixed methods research, combining questionnaires and ethnographic data collection, conducted in 2003-2005 within families of people with Alzheimer’s disease. A statistical approach of the circulation of interviewers according to the demographic composition of the entourage reveals regularities and exceptions, which informs case studies. Analysing collected discrepancies reveals issues that are often unspoken, tensions between different norms of family caregiving and relations of domination. It also shows the specific consequences of neurodegenerative diseases for family and friends: the difficulty of qualifying care; the particular, central and fragile position of spouses; and the fluctuations in organisation due to worsening symptoms. |
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